Second Round of Chemo is Done!

I had to take Steve to the hospital today. His breathing hasn’t been very good and I just knew it needed to be addressed. I’m so glad we went because his oxygen level was VERY low. They did a CT scan to check for a new blood clot, but found nothing. There is a little fluid in his lung but the doctor thinks it’s old and doesn’t believe it is related to this. They did hear some crackling in one of his lungs so perhaps it’s a little collapsed but again, he didn’t think it would cause this much distress. There is some progression of disease in his lungs so it could be a combination of everything. They admitted him and have him on oxygen…

Steve saw his Oncologist today and his CEA is still going up, slowly but it’s going up.  Today it was 20.  In March it was 17 and in February it was 12.  So it’s moving up but that’s not the direction the doctor wants to see it go.  That means the cancer is also growing.  So it’s time to change chemo treatments. We are going on another family trip this month, this time out to California to Disneyland!!  The girls are VERY excited.  The doctor is going to wait until after our trip to change his chemo.  Tomorrow will be his last one on this type of chemo and then he’ll take a break so he’ll feel great on our trip. It’ll actually be a…

Steve finished his 4th round of chemo today.  He feels this one went the best so far.  However, the tingling in his fingers from the cold came much faster this time.  Almost immediately when he got home on Wednesday. But other than that it went well.  He still feels fine, he even had more of an appetite than he has the last few times so that’s good! Four down, many more to go! Next time the doctor will check his CEA number again – the tumor marker number.  We are hoping it’s lower again.  He said mid September he’ll send him for a scan to actually see where the tumors are now or more importantly where they are not!  We are looking forward to that. …

I’ve received so many texts, IM’s and messages with words of encouragement, love and support and I appreciate it so much! But please know that I am OKAY.  We’ve expected his treatment to take this turn at some point and honestly, we thought it would be 2 months ago. I posted this on Facebook today but I know not everyone is on Facebook…… Thank you everyone for your prayers, thoughts and positive vibes. We are so lucky to have so many amazing people in our lives. I do feel blessed, considering the situation. The time we’ve had since his diagnosis has been a gift, a gift that one day the girls will realize was one of the best gifts ever. Right before Steve starts the…

When we arrived at the infusion center today, they didn’t have the new orders for Steve’s reduction in the 5-FU chemo.  Thankfully she mentioned out loud that due to his weight loss, she needed to call the doctor to have him adjust his meds.  We told her that the Doctor said he was reducing one of them and she noticed she still had the old orders.  Glad we were paying attention. It took about an hour but he called in the right orders and he began chemo #7.   We did figure out which one the 5-FU is – it’s the one that he comes home with.  Before we leave they give him a push of it into his IV to give him a big dose…

This week Steve completed his 5th round of chemo and he’s still doing really well. The tingling in his fingers started almost immediately when he touched anything cold.  Even when he washes his hands, if the water is a little cold, they start to tingle.  Or when he got up at the infusion center to use the men’s room, he has to push the IV to the bathroom.  The handle on it is metal and it’s so cold inside the infusion center, that the handle gets cold.  So even that bothered him.  It’s extremely irritating and he gets very frustrated with it.  Even though he knows in the whole scheme of things, it’s not the worst thing, it’s still pretty irritating. I remember before I…