Second Round of Chemo is Done!

Sorry it’s been a while since I’ve updated you all about Steve.  I’ve been so busy between the girls being out of school, and my summer classes…. it’s been pretty crazy, to say the least! Steve had scans done about 1 month ago.  The chest CT was a little blurry because he sneezed during it and the (dumb) girl CT technician told him it came out fine, but in fact, it didn’t.  The radiologist that read the report couldn’t see everything, but from what he could see, the lungs were pretty much the same as the last scan.  His liver is good as well. There has been a spot on his liver that has grow slowly since January.   But the growth wasn’t very significant so…

I remember the night my husband died as if it was yesterday, but really it was 5 months ago that I would wake in the middle of the night to hear him mumble for the last time “I love you too”. Friday, November 4, 2016 Steve was transported to the Hospice home in Providence, RI.  We (Mark and I) wanted him to go the day before, but he told us he didn’t think he was ready and wanted one more night.  When he was placed on hospice less than two weeks earlier, we discussed that he would be transferred to the home before he died.  We didn’t want him to die at home. Friday morning we got up and started getting him ready for the…

I had to take Steve to the hospital today. His breathing hasn’t been very good and I just knew it needed to be addressed. I’m so glad we went because his oxygen level was VERY low. They did a CT scan to check for a new blood clot, but found nothing. There is a little fluid in his lung but the doctor thinks it’s old and doesn’t believe it is related to this. They did hear some crackling in one of his lungs so perhaps it’s a little collapsed but again, he didn’t think it would cause this much distress. There is some progression of disease in his lungs so it could be a combination of everything. They admitted him and have him on oxygen…

Today was Steve’s first day of chemo and it went well. We are getting chemo at the Infusion center at Kent Hospital and I have to say we really like them there.  Plus it’s nice and close to the house which is a huge plus. The doctor told us we’d be there for a couple of hours but when we arrived they told us that wasn’t true, we’d actually be there for about 5-6 hours.  Steve wasn’t very happy at first but it is what it is and nothing we can do about it.  Eventually we’ll be down to about 3 hours.  So perhaps that’s what he was thinking about. Since Steve had the port placed just 2 days ago, the area is still very…

This week Steve completed his 5th round of chemo and he’s still doing really well. The tingling in his fingers started almost immediately when he touched anything cold.  Even when he washes his hands, if the water is a little cold, they start to tingle.  Or when he got up at the infusion center to use the men’s room, he has to push the IV to the bathroom.  The handle on it is metal and it’s so cold inside the infusion center, that the handle gets cold.  So even that bothered him.  It’s extremely irritating and he gets very frustrated with it.  Even though he knows in the whole scheme of things, it’s not the worst thing, it’s still pretty irritating. I remember before I…

I’ve received so many texts, IM’s and messages with words of encouragement, love and support and I appreciate it so much! But please know that I am OKAY.  We’ve expected his treatment to take this turn at some point and honestly, we thought it would be 2 months ago. I posted this on Facebook today but I know not everyone is on Facebook…… Thank you everyone for your prayers, thoughts and positive vibes. We are so lucky to have so many amazing people in our lives. I do feel blessed, considering the situation. The time we’ve had since his diagnosis has been a gift, a gift that one day the girls will realize was one of the best gifts ever. Right before Steve starts the…