The Port is In Place!

Today is a new day, and a day to look back and reflect on the year. A friend wrote something that inspired me and made me look at 2016 differently. My husband died, that was absolutely the worst thing that has ever happened to me. But I’ve grown so much through that, and I like who I am today. 2016 was a GIFT and I am thankful for that. I had Steve by my side for almost all of it…. that was not something we knew we would have back in June 2014. Friends I’ve known for a long time and a shorter time came together and became friends. And all my friendships grew, tremendously! I learned from my friends and family what it means…

Today we saw the Oncologist again with an update on Steve’s CEA Number.   And we got some really good news! Steve’s CEA (tumor marker number) is down to 64!!!  On June 4th it was 536.  Then a few weeks later it was up to 834.8. Four weeks ago it was down to 263.1.   And today it’s 64!!! The doctor said not all cancers can measure the tumors with this marker, but Colon Cancer is one of them so this does tell us that the tumors are shrinking.  But we can tell as well because of some little differences that we see that I’ve mentioned before.  (His dry cough is gone and his night sweats are gone for the most part and his bowels are better. …

I remember the night my husband died as if it was yesterday, but really it was 5 months ago that I would wake in the middle of the night to hear him mumble for the last time “I love you too”. Friday, November 4, 2016 Steve was transported to the Hospice home in Providence, RI.  We (Mark and I) wanted him to go the day before, but he told us he didn’t think he was ready and wanted one more night.  When he was placed on hospice less than two weeks earlier, we discussed that he would be transferred to the home before he died.  We didn’t want him to die at home. Friday morning we got up and started getting him ready for the…

As a parent, the last thing we ever want to do is see our children hurt. We’ve raised our girls with so much love and protection in the hopes that they would always feel safe with us. As a family, we’ve been through a lot the past 23 months and we’ve tried to be as honest as we could with the girls, letting them know along the way how much we love them and that everything would always be “okay”. Today we had to do the hardest thing ever… today we told the girls that the chemo isn’t working and the tumors are still growing. And even though daddy was going to continue on chemo the next 6 months, ultimately it’s just to get more…

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…