The Port is In Place!

My families world was turned upside down in June 2014.  I’ve decided to share it here on our family blog to possibly help someone going through the same thing.  I’ve searched high and low for months for support groups and finally found one online.  I have so many questions and concerns that really only someone who’s gone through this, can help with. Here is our story: On Friday May 30, 2014 my husband Steve came home complaining of chest pains.  He was thinking he had gas and then ate dinner.  After dinner it didn’t get any better so he stayed home while I took Holly to her softball game.  I made him promise me that if it got worse, he’d take an aspirin.  He assured…

Our amazing community is hosting an evening of Yoga in honor of Steve this week.  I can’t even express in words what this means to our family.  Every week our friends amaze us with their love, support and generosity.   Calling ourselves Lucky doesn’t even describe what we feel.  LOVED is really more like it. Steve is a very proud man, so letting them do this for us has been very hard for him to accept.  But he’s realized that this is a way that all the people around us can help me, can take some sort of burden off of me.  It’s also a way for him to see how much love we have around us. I recently posted this on Facebook and I know…

We met with the surgeon on June 20 2014 that was going to put in the Port-A-Cath on the following Monday.  He explained to us that it will sit in the front of his shoulder, just under the skin.  It can stay there for as long as we need it and then removed when we are done.  He will receive his chemo through the port and have all his blood work drawn from it.  This way they don’t have to poke him each time.  Of course there are things that can complicate this but those things are rare and probably won’t happen.  We are pretty confident that getting the Port is the best way to do it. The surgery was outpatient and pretty simple and…

Steve is going this morning for his first CT Scan.  We are pretty hopeful that it will look good because of how good his CEA number has been.  But seeing it will be good to reassure us that the Chemo is working. He will also have is CEA number checked on Monday.  We will have the results of both of those tests on Tuesday when we meet with his Oncologist. Steve has been getting mouth sores the last 3 cycles and they are unbearable for him.  We’ve been trying all sorts of ways to make them better and possibly avoid them but after talking to the doctor yesterday, we are thinking of pulling back on one of the Chemotherapy drugs a little bit.  There is…

Today Steve and I saw the doctor and received the results from his CT Scan on Friday, his Bone Scan on Monday and his CEA blood work.   The CEA is 17 right now… it was 12.  It is slowly rising but not a huge jump in a month.  The bone scan showed some new “Spots” on his spine but nothing big that can be measured.   The CT Scan showed his tumors for the most part are “stable”.  The doctor thinks the CEA rising is due to the new spots on his spine. What the doctor doesn’t know is if the chemo Steve is on right now is slowing down the growth or not working at all and the growth is just slow.  That’s impossible to…

Happy New Year! The last chemo treatment Steve received on Christmas Eve went well.  He over did it over the holiday with all our company so he was exhausted coming out of it, but he enjoyed the time we spent with friends and family so it was worth it for him.  He also got another mouth sore this time around, however it wasn’t at it’s worst and he was still able to eat more than just soft foods.  That said, he still dropped a few pounds.  He’s going to try and work on putting those back on this week. The doctor checked his CEA number on Monday and it was 15.6, which is a little higher than last time.  We never head from the doctor…