The Port is In Place!

My families world was turned upside down in June 2014.  I’ve decided to share it here on our family blog to possibly help someone going through the same thing.  I’ve searched high and low for months for support groups and finally found one online.  I have so many questions and concerns that really only someone who’s gone through this, can help with. Here is our story: On Friday May 30, 2014 my husband Steve came home complaining of chest pains.  He was thinking he had gas and then ate dinner.  After dinner it didn’t get any better so he stayed home while I took Holly to her softball game.  I made him promise me that if it got worse, he’d take an aspirin.  He assured…

The doctor called to tell Steve today that his CEA number is 12.  Last time it was 11 but the doctor says that’s still great and it will go up and down a bit, but doesn’t really mean anything.  So Steve was happy. Steve also noticed at 1pm today that his pump wasn’t working and we don’t think it pumped anything since we left the infusion center yesterday at 1pm.  🙁  So  now he’s hooked up until Saturday instead of Friday.  We weren’t very happy but nothing we can do.  Now we know to make sure it’s working like all the time.

Steve has been having a lot more back pain.  It started to get worse last Thursday night.  He had a hard time getting comfortable and could barely move.  It was so hard to see him in so much pain.  Friday morning when I spoke with the doctor, he told him to double up on the pain meds he prescribed him and if it got really out of control to go to the hospital to get something stronger to give him relief.  He was scheduled to have a bone scan on Monday (yesterday) and CT Scan Tuesday (today) so he said we’d talk after those scans to see what was going on. After doubling up on the pain meds when needed, he felt better and got…

I haven’t posted in a while.  Sorry about that.  I’ve talked with most of you in person rather than updating this site.  The reason why I haven’t updated, honestly, is because it hasn’t been news I wanted to share.  The news I want to share is “The tumors are shrinking!”  or ” the tumors are gone”.  But I haven’t been able to share that news because that’s not what has happened. Two months ago when Steve had a CT Scan there was a little bit of growth in his lungs.   The doctor believed that at the beginning of the year when he changed drugs and went a couple of cycles without one of them, the growth happened.   At the same time his CEA number went…

On June 17, 2014  Steve had his first Colonoscopy.   Thankfully the prep for it wasn’t too bad on him.  The doctor wasn’t expecting to find the tumor because he looked at all the scans beforehand and even he saw nothing in the colon.  So he was pretty curious as to what he’d see.  And so were we.  I was actually wondering if there might not even be a tumor and this would be a rare type of colon cancer.   My husband would be the one to not have something easily found.   Because he likes to be ‘different’. Well, that wasn’t the case.  The doctor did find the tumor and it’s big.  The mass is in the sigmoid colon.  He said it’s pretty much the entire…

Today we saw the Oncologist again with an update on Steve’s CEA Number.   And we got some really good news! Steve’s CEA (tumor marker number) is down to 64!!!  On June 4th it was 536.  Then a few weeks later it was up to 834.8. Four weeks ago it was down to 263.1.   And today it’s 64!!! The doctor said not all cancers can measure the tumors with this marker, but Colon Cancer is one of them so this does tell us that the tumors are shrinking.  But we can tell as well because of some little differences that we see that I’ve mentioned before.  (His dry cough is gone and his night sweats are gone for the most part and his bowels are better. …