2nd Opinion

On June 18th, we saw the Oncologist and he told us the bone scan was clean and there is no cancer in his bones.  First good news we had received!  I thought for sure it would be so I was pretty happy to hear that. The plan was to start chemo on Wednesday, June 25, 2014 and the doctor planned for the first scans to be done probably in September to see it’s working.   They will be doing blood work weekly or biweekly to make sure the chemo isn’t affecting his white/red blood cells and platelets.  If it does, the doctor will readjust. Really hoping we can put this in remission for a long time.  Only time will tell.

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…

Steve is doing great.  He’s just tired.  But he feels fine. The side effects from Chemo can come on at anytime but he’s doing really well so that helps.  He had trouble sleeping last night because one of the meds is a steroid – the nurse warned us about it. Steve is also having some back problems which is completely unrelated to the cancer, thankfully.  So his back was also very sore.  After he finally listened to me and took the pain pills they gave him at 2am, he was able to fall asleep and slept through till 10am! Who knew I actually knew what I was talking about! He’s tired still and has napped a few times but in general, he still feels great. …

On June 17, 2014  Steve had his first Colonoscopy.   Thankfully the prep for it wasn’t too bad on him.  The doctor wasn’t expecting to find the tumor because he looked at all the scans beforehand and even he saw nothing in the colon.  So he was pretty curious as to what he’d see.  And so were we.  I was actually wondering if there might not even be a tumor and this would be a rare type of colon cancer.   My husband would be the one to not have something easily found.   Because he likes to be ‘different’. Well, that wasn’t the case.  The doctor did find the tumor and it’s big.  The mass is in the sigmoid colon.  He said it’s pretty much the entire…

Well friends…..It’s with a very heavy heart that I have to write the post I never wanted to write, nor did I expect to be writing it anytime soon. Steve came home today with Hospice. Unfortunately the tumors in his lungs have spread more and have taken over about 80% of his lung capacity, which leaves him with about 20% to breath. The doctor doesn’t really know how much more time he has, but from the looks of how much of the cancer that has grown in his lungs over the past month, his guess is about 2 weeks give or take. He’s on oxygen and Morphine to help him be more comfortable. He’s happy to be home and in a place where he can…

Steve’s surgery last week was a success.  The spine surgeons were able to remove the tumors that were compressing Steve’s spinal cord without having to insert the titanium rods.  His bones were surprisingly strong.  They did insert a little cement into the spine where they removed the tumors, just to give it a little more strength. Because they didn’t have to insert the rods, the recovery was much easier.  Steve was up walking around the following day and then doing the stairs a day later. Two days after his surgery, his heart rate was still high – it was running 115-120.   Come to find out it was because he has a blood clot in his lungs.  He was at a high risk for getting one,…