The Port is In Place!

Today began round 6 of chemo.   It was the fastest and smoothest one yet.  We had one of our favorite nurses Erin (she was actually our first so that maybe why we like her so much).  The port worked great and Erin got the IV in right away with a perfect blood return!  So we were off to a great start. Steve feels good today, his appetite is up and he’s just in a good mood.  He’s been unhappy the past week due to another sore on his tongue.  When he gets these sores he can’t eat much or even drink much.  So think about it, would you be miserable?  I know I would!!  So it was a tough week but yesterday he started feeling…

My daughter’s and their friends spent their day off from school today selling lemonade to raise money for Colon Cancer. I’ve never been more proud of them. Not once did they ask if they could keep any of the money. Instead they went inside and got their money they have in a donation jar of their own, and poured it into the bucket. We’ve raised $245.21 so far and still have some donations coming in. Being a parent is hard, but seeing these kids do things like this reminds me it’s all worth it and I am doing a good job. And so are my friends who’s kids joined my girls today to help out. It was a great day and my heart feels good.

I had to take Steve to the hospital today. His breathing hasn’t been very good and I just knew it needed to be addressed. I’m so glad we went because his oxygen level was VERY low. They did a CT scan to check for a new blood clot, but found nothing. There is a little fluid in his lung but the doctor thinks it’s old and doesn’t believe it is related to this. They did hear some crackling in one of his lungs so perhaps it’s a little collapsed but again, he didn’t think it would cause this much distress. There is some progression of disease in his lungs so it could be a combination of everything. They admitted him and have him on oxygen…

I knew it had been a while since I updated this site, but I didn’t realize it had been 6 months!  The reason I haven’t updated in the past 6 months is there hasn’t really been a significant change….. which isn’t a bad thing when you are stage 4! This past week, Steve had his last follow up for the year so I thought it was a good time to share how he’s doing. His CEA number is holding at 11, which is low and good.  He had a bone scan earlier this month because he was having some back pain and his last scan still showed a spot on his vertebrae.  I won’t lie, this scared me.   I was more worried than Steve was. …

Today was Steve’s first day of chemo and it went well. We are getting chemo at the Infusion center at Kent Hospital and I have to say we really like them there.  Plus it’s nice and close to the house which is a huge plus. The doctor told us we’d be there for a couple of hours but when we arrived they told us that wasn’t true, we’d actually be there for about 5-6 hours.  Steve wasn’t very happy at first but it is what it is and nothing we can do about it.  Eventually we’ll be down to about 3 hours.  So perhaps that’s what he was thinking about. Since Steve had the port placed just 2 days ago, the area is still very…

Steve starts radiation today.  He’ll have 10 treatments, Monday-Friday, to keep the tumors that they just removed in surgery, from growing back quickly and compress his spine again. He definitely doesn’t want to have that happen again. He had a CT Scan earlier this week to set up the radiation and the table he had to lay on was very hard so he was in a lot of pain afterwards.  It’s not the same pain as before the surgery but a different area and different type of pain.  But pain is pain. We’ve been spending all our time together since he can’t really go anywhere on his own.  It’s actually been pretty nice because it’s been quality time.  He seems more relaxed about the whole…