Second Round of Chemo is Done!

Steve had another CT Scan last week and it showed that unfortunately the cancer is still spreading in his lungs.  The liver is stable.  He also has some pretty swollen Lympnodes near his lungs.  His CEA is the same as it’s been the last 3 months – 11. We had a really good conversation with the doctor about what is happening and what we should do next.   So here is the plan right now: 1.  We are going to go to Dana Faber and talk to them about clinical trials.  It’s not very likely Steve will do a trail, but we at least want to talk to them about it. 2.  Steve will continue on the chemo he is on right now for 6 weeks…

Today we saw the Oncologist again with an update on Steve’s CEA Number.   And we got some really good news! Steve’s CEA (tumor marker number) is down to 64!!!  On June 4th it was 536.  Then a few weeks later it was up to 834.8. Four weeks ago it was down to 263.1.   And today it’s 64!!! The doctor said not all cancers can measure the tumors with this marker, but Colon Cancer is one of them so this does tell us that the tumors are shrinking.  But we can tell as well because of some little differences that we see that I’ve mentioned before.  (His dry cough is gone and his night sweats are gone for the most part and his bowels are better. …

On Tuesday, June 10, 2014, we saw the oncologist from the hospital to get the final results from the biopsy.  We knew Steve had cancer but we didn’t know what kind so we weren’t sure what we were dealing with, yet. That was when we found out it was Colon Cancer.  And since it’s spread to 2 other organs (liver and lung), it’s Stage 4.  Colon cancer is not curable once it’s spread to other organs.  Therefore, Steve will never be cancer free.  🙁 The doctor said there really is no reason to operate since there was no large obstruction in the colon (since they didn’t see anything on the CT Scan) nor is there a lot of bleeding (since Steve has never noticed any)…

The doctor called to tell Steve today that his CEA number is 12.  Last time it was 11 but the doctor says that’s still great and it will go up and down a bit, but doesn’t really mean anything.  So Steve was happy. Steve also noticed at 1pm today that his pump wasn’t working and we don’t think it pumped anything since we left the infusion center yesterday at 1pm.  🙁  So  now he’s hooked up until Saturday instead of Friday.  We weren’t very happy but nothing we can do.  Now we know to make sure it’s working like all the time.

As a parent, the last thing we ever want to do is see our children hurt. We’ve raised our girls with so much love and protection in the hopes that they would always feel safe with us. As a family, we’ve been through a lot the past 23 months and we’ve tried to be as honest as we could with the girls, letting them know along the way how much we love them and that everything would always be “okay”. Today we had to do the hardest thing ever… today we told the girls that the chemo isn’t working and the tumors are still growing. And even though daddy was going to continue on chemo the next 6 months, ultimately it’s just to get more…