Second Round of Chemo is Done!

Steve is doing great.  He’s just tired.  But he feels fine. The side effects from Chemo can come on at anytime but he’s doing really well so that helps.  He had trouble sleeping last night because one of the meds is a steroid – the nurse warned us about it. Steve is also having some back problems which is completely unrelated to the cancer, thankfully.  So his back was also very sore.  After he finally listened to me and took the pain pills they gave him at 2am, he was able to fall asleep and slept through till 10am! Who knew I actually knew what I was talking about! He’s tired still and has napped a few times but in general, he still feels great. …

This week Steve completed his 5th round of chemo and he’s still doing really well. The tingling in his fingers started almost immediately when he touched anything cold.  Even when he washes his hands, if the water is a little cold, they start to tingle.  Or when he got up at the infusion center to use the men’s room, he has to push the IV to the bathroom.  The handle on it is metal and it’s so cold inside the infusion center, that the handle gets cold.  So even that bothered him.  It’s extremely irritating and he gets very frustrated with it.  Even though he knows in the whole scheme of things, it’s not the worst thing, it’s still pretty irritating. I remember before I…

Our amazing community is hosting an evening of Yoga in honor of Steve this week.  I can’t even express in words what this means to our family.  Every week our friends amaze us with their love, support and generosity.   Calling ourselves Lucky doesn’t even describe what we feel.  LOVED is really more like it. Steve is a very proud man, so letting them do this for us has been very hard for him to accept.  But he’s realized that this is a way that all the people around us can help me, can take some sort of burden off of me.  It’s also a way for him to see how much love we have around us. I recently posted this on Facebook and I know…

Steve had the port placed today.  It went well with no problems.  He’s sore and groggy and is actually taking the pain meds. Step 1 – DONE.

A week ago Wednesday, Steve’s doctor ordered an MRI to get a better look at his spine and the tumors to see if Radiation would be good or not.  When the radiologist read the MRI he contacted Steve’s doctor and suggested that Steve go to the hospital immediately to have the spine doctors look at the MRI.  The concern was that the tumors were too close to his spinal cord and they were afraid of paralysis. So at 10pm last Wednesday night, Steve and I headed to Rhode Island hospital where they gave him a steroid to relieve some of the swelling around the spinal cord to avoid the compression.  The spine doctors then looked at the MRI and decided that with the steroid, there…

I remember the night my husband died as if it was yesterday, but really it was 5 months ago that I would wake in the middle of the night to hear him mumble for the last time “I love you too”. Friday, November 4, 2016 Steve was transported to the Hospice home in Providence, RI.  We (Mark and I) wanted him to go the day before, but he told us he didn’t think he was ready and wanted one more night.  When he was placed on hospice less than two weeks earlier, we discussed that he would be transferred to the home before he died.  We didn’t want him to die at home. Friday morning we got up and started getting him ready for the…