Second Round of Chemo is Done!

As a parent, the last thing we ever want to do is see our children hurt. We’ve raised our girls with so much love and protection in the hopes that they would always feel safe with us. As a family, we’ve been through a lot the past 23 months and we’ve tried to be as honest as we could with the girls, letting them know along the way how much we love them and that everything would always be “okay”. Today we had to do the hardest thing ever… today we told the girls that the chemo isn’t working and the tumors are still growing. And even though daddy was going to continue on chemo the next 6 months, ultimately it’s just to get more…

Today we met with the Oncologist to get Steve’s CT Scan results and his latest CEA number.  The appointment wasn’t what we hoped for last week going into the CT Scan.  Steve and I both had different ideas of what to expect and neither of those expectations happened. First of all I’m very happy to tell you that his CEA number is 21.  Last time it was 64 so this was a nice drop and we were very happy to see it so low. That was good. Next is the size of the tumors.  They’ve decreased significantly in both his lungs and liver.  Which is great news!  But, Honestly this is where I was surprised as I assumed that one of his organs would be…

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…

Steve had the port placed today.  It went well with no problems.  He’s sore and groggy and is actually taking the pain meds. Step 1 – DONE.

We received the results of the CT Scan today.  The doctor says that after looking at the ct scan himself, there has been a small reduction in the tumors.  It’s not as big as the last time but he feels they are all slightly smaller.  He did point out that they are measuring them in mm and not cm so we are looking at something very small in size. Tomorrow is Steve’s first treatment in the next chemo regimen and it will be less the Oxaliplatin.  The doctor is going to monitor his CEA number closely and if he sees any change then he’ll likely change up his entire chemo prescription and use some different drugs. At this point the doctor is looking at it…