Back Surgery is Scheduled for Today

Yesterday  (7/21/14) Steve and I received some really good news about his Stage 4 Colon Cancer.  His CEA number, which is the tumor marker in his blood, was lower – a lot lower!  When he was in the hospital the first week of June it was 536.  Then a few weeks later it was up to 834.8.  Yesterday it was 263.1.   Needless to say we both cried when I gave him the good news. That means the chemo is working. We saw the doctor today and he was very happy as well with the results.   He said the drop in his CEA is great after only 2 treatments.  I asked him if he expects that number to go to zero at some point, if…

Steve had an appointment this week with his oncologist to go over his blood work and his CEA number is 12 right now… it was 11 last month. That’s GOOD! No big jump. So chemo will stay the same for another month (2 treatments).  The doctor scheduled a CT Scan and a Bone Scan the beginning of March before we see him again. If there is a 20% increase or there are new tumors, he’ll switch his chemo to the Oxiliplatian (for 6 months), if not then he’ll stay as he is for another month. That being said, it was a good appointment because he can keep going with this chemo for another month.  So we bought another month! In the meantime, we are going…

On June 18th, we saw the Oncologist and he told us the bone scan was clean and there is no cancer in his bones.  First good news we had received!  I thought for sure it would be so I was pretty happy to hear that. The plan was to start chemo on Wednesday, June 25, 2014 and the doctor planned for the first scans to be done probably in September to see it’s working.   They will be doing blood work weekly or biweekly to make sure the chemo isn’t affecting his white/red blood cells and platelets.  If it does, the doctor will readjust. Really hoping we can put this in remission for a long time.  Only time will tell.

On Tuesday, June 10, 2014, we saw the oncologist from the hospital to get the final results from the biopsy.  We knew Steve had cancer but we didn’t know what kind so we weren’t sure what we were dealing with, yet. That was when we found out it was Colon Cancer.  And since it’s spread to 2 other organs (liver and lung), it’s Stage 4.  Colon cancer is not curable once it’s spread to other organs.  Therefore, Steve will never be cancer free.  🙁 The doctor said there really is no reason to operate since there was no large obstruction in the colon (since they didn’t see anything on the CT Scan) nor is there a lot of bleeding (since Steve has never noticed any)…

We saw our 2nd opinion doctor today who is the best in RI and came HIGHLY recommended by many.  He agreed with our current Oncologist and thinks this chemo regimen is really the best way to start.  And then see what happens in 2-3 months when they do the first scan.  At that point he said if it isn’t working, we should think about something else.  He’d be more than happy to talk with us then but sees no reason to do anything else right now. Knowing he feels the same way makes us even more confident that this is the best thing for Steve.  And we really like our current Oncologist so we’ll be staying with him.  However, our 2nd opinion doctor also said…

My daughter’s and their friends spent their day off from school today selling lemonade to raise money for Colon Cancer. I’ve never been more proud of them. Not once did they ask if they could keep any of the money. Instead they went inside and got their money they have in a donation jar of their own, and poured it into the bucket. We’ve raised $245.21 so far and still have some donations coming in. Being a parent is hard, but seeing these kids do things like this reminds me it’s all worth it and I am doing a good job. And so are my friends who’s kids joined my girls today to help out. It was a great day and my heart feels good.