Back Surgery is Scheduled for Today
Steve is at Rhode Island hospital and he’s scheduled to have surgery today. And he’s still smiling…
He’s not going to give up easily and without a smile on his face. I admire that about him so much!
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The Port is In Place!
ByKarenSteve had the port placed today. It went well with no problems. He’s sore and groggy and is actually taking the pain meds. Step 1 – DONE.
Saying Good Night to Daddy….
ByKarenSince we became parents, Steve has always given the girls a good night hug in kiss once they were in bed. It’s just something he always made sure he did. It sounds trivial, but it was important to him to kiss them good night and remind them how much he loved them. HE LOVED THEM SO MUCH! Tonight the girls said good night to daddy for the last time at home. Tomorrow Steve will be transferred to a Hospice Home where he can be cared for by people who can make him more comfortable than we can here. Mark and I tried our best but we are at a point where we need to hand it over to someone else. They will be giving him…
Another CT Scan update..
ByKarenI forgot to mention in my previous post that the CT Scan also showed that the inflammation of his colon and the small perforation in the colon that they saw last time, is no longer visible. So that means that part healed. That made us VERY HAPPY because that means surgery is not in the future again… which is a good thing. Surgery is not something we want because that means no chemo for at least 6 weeks after and perhaps even more. Right now Chemo is what he needs. That was my Christmas Gift!
The hardest part of this journey – telling our girls – we finally faced today.
ByKarenAs a parent, the last thing we ever want to do is see our children hurt. We’ve raised our girls with so much love and protection in the hopes that they would always feel safe with us. As a family, we’ve been through a lot the past 23 months and we’ve tried to be as honest as we could with the girls, letting them know along the way how much we love them and that everything would always be “okay”. Today we had to do the hardest thing ever… today we told the girls that the chemo isn’t working and the tumors are still growing. And even though daddy was going to continue on chemo the next 6 months, ultimately it’s just to get more…
Another Round of Chemo Down….
ByKarenSteve had chemo last week and once again his side effects weren’t that bad since the reduction. He’s even been able to maintain his weight, which is exactly what the doctor wants right now. It’s been nice outside the last few days so that’s been helpful too. On the cold days we had a week ago he had a very hard time. Once his hands and nose get cold, they hurt. He’s trying to bundle up the best he can, but if he bundles up too much he sweats. Over time he’ll find a balance. It’s something new to get used to. He sees the Oncologist next Tuesday and he will then make an appointment for another CT Scan. I’m very hopeful that we will…
4 week CEA Check
ByKarenSteve had an appointment this week with his oncologist to go over his blood work and his CEA number is 12 right now… it was 11 last month. That’s GOOD! No big jump. So chemo will stay the same for another month (2 treatments). The doctor scheduled a CT Scan and a Bone Scan the beginning of March before we see him again. If there is a 20% increase or there are new tumors, he’ll switch his chemo to the Oxiliplatian (for 6 months), if not then he’ll stay as he is for another month. That being said, it was a good appointment because he can keep going with this chemo for another month. So we bought another month! In the meantime, we are going…