Back Surgery is Scheduled for Today

Steve has been having a lot more back pain.  It started to get worse last Thursday night.  He had a hard time getting comfortable and could barely move.  It was so hard to see him in so much pain.  Friday morning when I spoke with the doctor, he told him to double up on the pain meds he prescribed him and if it got really out of control to go to the hospital to get something stronger to give him relief.  He was scheduled to have a bone scan on Monday (yesterday) and CT Scan Tuesday (today) so he said we’d talk after those scans to see what was going on. After doubling up on the pain meds when needed, he felt better and got…

Sorry it’s been a while since I’ve updated you all about Steve.  I’ve been so busy between the girls being out of school, and my summer classes…. it’s been pretty crazy, to say the least! Steve had scans done about 1 month ago.  The chest CT was a little blurry because he sneezed during it and the (dumb) girl CT technician told him it came out fine, but in fact, it didn’t.  The radiologist that read the report couldn’t see everything, but from what he could see, the lungs were pretty much the same as the last scan.  His liver is good as well. There has been a spot on his liver that has grow slowly since January.   But the growth wasn’t very significant so…

Steve starts radiation today.  He’ll have 10 treatments, Monday-Friday, to keep the tumors that they just removed in surgery, from growing back quickly and compress his spine again. He definitely doesn’t want to have that happen again. He had a CT Scan earlier this week to set up the radiation and the table he had to lay on was very hard so he was in a lot of pain afterwards.  It’s not the same pain as before the surgery but a different area and different type of pain.  But pain is pain. We’ve been spending all our time together since he can’t really go anywhere on his own.  It’s actually been pretty nice because it’s been quality time.  He seems more relaxed about the whole…

A year ago today Steve and I sat at chemo for his “New Year’s Chemo”. I was grateful to have him for another year. After the new year we found out that chemo would end in the fall. The doctor estimated (at that time) he would probably have about 4-6 months after chemo ended. Of course that was without knowing how the last 6 months of chemo would work. He was being optimistic. When Steve and I talked about that, we figured we’d get through the holidays, have another new year’s eve together and then sometime in 2017, he’d pass away. Of course we didn’t know for sure, but we were being optimistic. From the day that we found out he was stage 4, I…

Today was Steve’s 3rd Chemo Treatment.  It’s crazy how fast the last 6 weeks have gone by since we first found out he had cancer. Last time there was no issue with the port and the IV went right in with no problems.  This week we had a problem again.  Not getting the IV in, but getting the blood to flow out of the IV.  You see, when they put a port in, sometimes your body realizes this foreign object is in there and doesn’t like it.  So it sort of forms like a blood clot so nothing will flow.  I’m not sure of the exact terms they use but basically it blocks it.  When this happens you can get stuff into the IV, like…

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…