Back Surgery is Scheduled for Today

Steve saw his Oncologist today and his CEA is still going up, slowly but it’s going up.  Today it was 20.  In March it was 17 and in February it was 12.  So it’s moving up but that’s not the direction the doctor wants to see it go.  That means the cancer is also growing.  So it’s time to change chemo treatments. We are going on another family trip this month, this time out to California to Disneyland!!  The girls are VERY excited.  The doctor is going to wait until after our trip to change his chemo.  Tomorrow will be his last one on this type of chemo and then he’ll take a break so he’ll feel great on our trip. It’ll actually be a…

It’s a little over a month later and the girls and I have began moving forward with our life without Steve.  I won’t lie, it’s awful.  Some days are okay, but lately most are not.  I’m really struggling with this.  I thought I would be okay.  I thought I was prepared for this.  I thought I grieved the last 2+ years, and I thought that was hard.  This is worse.  I was no where near ready for losing him.  I was no where near ready for the pain of missing someone that has been in my life, every day for 18 years.  Especially losing them when you have no choice. I also thought we had more time.  I thought we had one more Thanksgiving… one…

Steve is going this morning for his first CT Scan.  We are pretty hopeful that it will look good because of how good his CEA number has been.  But seeing it will be good to reassure us that the Chemo is working. He will also have is CEA number checked on Monday.  We will have the results of both of those tests on Tuesday when we meet with his Oncologist. Steve has been getting mouth sores the last 3 cycles and they are unbearable for him.  We’ve been trying all sorts of ways to make them better and possibly avoid them but after talking to the doctor yesterday, we are thinking of pulling back on one of the Chemotherapy drugs a little bit.  There is…

We received the results of the CT Scan today.  The doctor says that after looking at the ct scan himself, there has been a small reduction in the tumors.  It’s not as big as the last time but he feels they are all slightly smaller.  He did point out that they are measuring them in mm and not cm so we are looking at something very small in size. Tomorrow is Steve’s first treatment in the next chemo regimen and it will be less the Oxaliplatin.  The doctor is going to monitor his CEA number closely and if he sees any change then he’ll likely change up his entire chemo prescription and use some different drugs. At this point the doctor is looking at it…

Steve had chemo last week and once again his side effects weren’t that bad since the reduction.  He’s even been able to maintain his weight, which is exactly what the doctor wants right now.  It’s been nice outside the last few days so that’s been helpful too.  On the cold days we had a week ago he had a very hard time.  Once his hands and nose get cold, they hurt.  He’s trying to bundle up the best he can, but if he bundles up too much he sweats.  Over time he’ll find a balance.  It’s something new to get used to. He sees the Oncologist next Tuesday and he will then make an appointment for another CT Scan.  I’m very hopeful that we will…

I just wanted to post an update since I haven’t in a while.   I realize some people are afraid to ask, but seriously you can always ask us how Steve is doing.  We don’t mind talking about it.  It’s our life now. The girls went to camp the last week of August, right before school started.  It was a camp that is only for children who’s parents have battled cancer/ have cancer.  It’s called Camp Kesem and it’s a free one week overnight camp. When we first heard of it, I immediately thought how great it would be for the girls to meet other children who have a life like theirs and to hear their stories.  But I figured they would NEVER go away for…