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Dana Faber Visit Update
Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials. We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much. But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct. There is nothing right now for Steve’s specific cancer and mutation of his cancer. However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014. While the doctor doesn’t think Steve’s cancer has this mutation according to other…
Good bye Steve!!
This morning I did the hardest thing I’ve ever had to do. I said good bye to my husband Steve. He peacefully passed away at 6:20 am and is no longer suffering. His soul is free from cancer, so he won! Thank you all so much for your prayers, friendship and love over these past 2+ years. Steve’s Obituary
Today is Steve’s First CT Scan
Steve is going this morning for his first CT Scan. We are pretty hopeful that it will look good because of how good his CEA number has been. But seeing it will be good to reassure us that the Chemo is working. He will also have is CEA number checked on Monday. We will have the results of both of those tests on Tuesday when we meet with his Oncologist. Steve has been getting mouth sores the last 3 cycles and they are unbearable for him. We’ve been trying all sorts of ways to make them better and possibly avoid them but after talking to the doctor yesterday, we are thinking of pulling back on one of the Chemotherapy drugs a little bit. There is…
Still plugging away….
I just wanted to post an update since I haven’t in a while. I realize some people are afraid to ask, but seriously you can always ask us how Steve is doing. We don’t mind talking about it. It’s our life now. The girls went to camp the last week of August, right before school started. It was a camp that is only for children who’s parents have battled cancer/ have cancer. It’s called Camp Kesem and it’s a free one week overnight camp. When we first heard of it, I immediately thought how great it would be for the girls to meet other children who have a life like theirs and to hear their stories. But I figured they would NEVER go away for…
First Round of Chemo Done!
Friday (6/27) Steve completed his first round of Chemo. He was so happy to have the visiting nurse remove the IV and he was excited to take a nice long shower. Something he can’t do while hooked up to Chemo. He is doing well. Just very tired. Having the surgery in the same week as starting chemo, was very hard. He’s sore from ‘babying’ his right side (where the port was put in) and hopes that the next round he’ll be more comfortable with the IV in. As for side effects from Chemo, they were very minor. He didn’t get nauseous (thankfully!), he was very tired, his taste buds were off a bit, and he didn’t seem to have much of an appetite (which we…
Back in the hospital…..
I had to take Steve to the hospital today. His breathing hasn’t been very good and I just knew it needed to be addressed. I’m so glad we went because his oxygen level was VERY low. They did a CT scan to check for a new blood clot, but found nothing. There is a little fluid in his lung but the doctor thinks it’s old and doesn’t believe it is related to this. They did hear some crackling in one of his lungs so perhaps it’s a little collapsed but again, he didn’t think it would cause this much distress. There is some progression of disease in his lungs so it could be a combination of everything. They admitted him and have him on oxygen…