Back Surgery is Scheduled for Today

A week ago Wednesday, Steve’s doctor ordered an MRI to get a better look at his spine and the tumors to see if Radiation would be good or not.  When the radiologist read the MRI he contacted Steve’s doctor and suggested that Steve go to the hospital immediately to have the spine doctors look at the MRI.  The concern was that the tumors were too close to his spinal cord and they were afraid of paralysis. So at 10pm last Wednesday night, Steve and I headed to Rhode Island hospital where they gave him a steroid to relieve some of the swelling around the spinal cord to avoid the compression.  The spine doctors then looked at the MRI and decided that with the steroid, there…

Today was Steve’s 3rd Chemo Treatment.  It’s crazy how fast the last 6 weeks have gone by since we first found out he had cancer. Last time there was no issue with the port and the IV went right in with no problems.  This week we had a problem again.  Not getting the IV in, but getting the blood to flow out of the IV.  You see, when they put a port in, sometimes your body realizes this foreign object is in there and doesn’t like it.  So it sort of forms like a blood clot so nothing will flow.  I’m not sure of the exact terms they use but basically it blocks it.  When this happens you can get stuff into the IV, like…

When we arrived at the infusion center today, they didn’t have the new orders for Steve’s reduction in the 5-FU chemo.  Thankfully she mentioned out loud that due to his weight loss, she needed to call the doctor to have him adjust his meds.  We told her that the Doctor said he was reducing one of them and she noticed she still had the old orders.  Glad we were paying attention. It took about an hour but he called in the right orders and he began chemo #7.   We did figure out which one the 5-FU is – it’s the one that he comes home with.  Before we leave they give him a push of it into his IV to give him a big dose…

Steve finished his 4th round of chemo today.  He feels this one went the best so far.  However, the tingling in his fingers from the cold came much faster this time.  Almost immediately when he got home on Wednesday. But other than that it went well.  He still feels fine, he even had more of an appetite than he has the last few times so that’s good! Four down, many more to go! Next time the doctor will check his CEA number again – the tumor marker number.  We are hoping it’s lower again.  He said mid September he’ll send him for a scan to actually see where the tumors are now or more importantly where they are not!  We are looking forward to that. …

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…

Steve had chemo last week and once again his side effects weren’t that bad since the reduction.  He’s even been able to maintain his weight, which is exactly what the doctor wants right now.  It’s been nice outside the last few days so that’s been helpful too.  On the cold days we had a week ago he had a very hard time.  Once his hands and nose get cold, they hurt.  He’s trying to bundle up the best he can, but if he bundles up too much he sweats.  Over time he’ll find a balance.  It’s something new to get used to. He sees the Oncologist next Tuesday and he will then make an appointment for another CT Scan.  I’m very hopeful that we will…