Back Surgery is Scheduled for Today

Steve saw his Oncologist today and his CEA is still going up, slowly but it’s going up.  Today it was 20.  In March it was 17 and in February it was 12.  So it’s moving up but that’s not the direction the doctor wants to see it go.  That means the cancer is also growing.  So it’s time to change chemo treatments. We are going on another family trip this month, this time out to California to Disneyland!!  The girls are VERY excited.  The doctor is going to wait until after our trip to change his chemo.  Tomorrow will be his last one on this type of chemo and then he’ll take a break so he’ll feel great on our trip. It’ll actually be a…

Steve had another CT Scan last week and it showed that unfortunately the cancer is still spreading in his lungs.  The liver is stable.  He also has some pretty swollen Lympnodes near his lungs.  His CEA is the same as it’s been the last 3 months – 11. We had a really good conversation with the doctor about what is happening and what we should do next.   So here is the plan right now: 1.  We are going to go to Dana Faber and talk to them about clinical trials.  It’s not very likely Steve will do a trail, but we at least want to talk to them about it. 2.  Steve will continue on the chemo he is on right now for 6 weeks…

Last week was great.  Steve went to work, no doctor’s appointments, the girls fought like normal, I felt anxious about the girls fighting and Max pooped in the house.  It was a normal week and it felt good. I think we needed that break from “cancer”.   Just to realize that we are all still here and need to move along as normal as we can.  It was nice.  It recharged us for another week of Chemo.  Dr. Sam told us that we “can’t change what is happening to Steve.  We can only live each day as best as we can so we have no regrets.”  And he is right.  And while it’s hard to think that way every second of every day, we try…

I just wanted to post an update since I haven’t in a while.   I realize some people are afraid to ask, but seriously you can always ask us how Steve is doing.  We don’t mind talking about it.  It’s our life now. The girls went to camp the last week of August, right before school started.  It was a camp that is only for children who’s parents have battled cancer/ have cancer.  It’s called Camp Kesem and it’s a free one week overnight camp. When we first heard of it, I immediately thought how great it would be for the girls to meet other children who have a life like theirs and to hear their stories.  But I figured they would NEVER go away for…

Today Steve and I saw the doctor and received the results from his CT Scan on Friday, his Bone Scan on Monday and his CEA blood work.   The CEA is 17 right now… it was 12.  It is slowly rising but not a huge jump in a month.  The bone scan showed some new “Spots” on his spine but nothing big that can be measured.   The CT Scan showed his tumors for the most part are “stable”.  The doctor thinks the CEA rising is due to the new spots on his spine. What the doctor doesn’t know is if the chemo Steve is on right now is slowing down the growth or not working at all and the growth is just slow.  That’s impossible to…

I haven’t posted in a while.  Sorry about that.  I’ve talked with most of you in person rather than updating this site.  The reason why I haven’t updated, honestly, is because it hasn’t been news I wanted to share.  The news I want to share is “The tumors are shrinking!”  or ” the tumors are gone”.  But I haven’t been able to share that news because that’s not what has happened. Two months ago when Steve had a CT Scan there was a little bit of growth in his lungs.   The doctor believed that at the beginning of the year when he changed drugs and went a couple of cycles without one of them, the growth happened.   At the same time his CEA number went…