Back Surgery is Scheduled for Today

Today was Steve’s 3rd Chemo Treatment.  It’s crazy how fast the last 6 weeks have gone by since we first found out he had cancer. Last time there was no issue with the port and the IV went right in with no problems.  This week we had a problem again.  Not getting the IV in, but getting the blood to flow out of the IV.  You see, when they put a port in, sometimes your body realizes this foreign object is in there and doesn’t like it.  So it sort of forms like a blood clot so nothing will flow.  I’m not sure of the exact terms they use but basically it blocks it.  When this happens you can get stuff into the IV, like…

Steve has been having a lot more back pain.  It started to get worse last Thursday night.  He had a hard time getting comfortable and could barely move.  It was so hard to see him in so much pain.  Friday morning when I spoke with the doctor, he told him to double up on the pain meds he prescribed him and if it got really out of control to go to the hospital to get something stronger to give him relief.  He was scheduled to have a bone scan on Monday (yesterday) and CT Scan Tuesday (today) so he said we’d talk after those scans to see what was going on. After doubling up on the pain meds when needed, he felt better and got…

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…

When we arrived at the infusion center today, they didn’t have the new orders for Steve’s reduction in the 5-FU chemo.  Thankfully she mentioned out loud that due to his weight loss, she needed to call the doctor to have him adjust his meds.  We told her that the Doctor said he was reducing one of them and she noticed she still had the old orders.  Glad we were paying attention. It took about an hour but he called in the right orders and he began chemo #7.   We did figure out which one the 5-FU is – it’s the one that he comes home with.  Before we leave they give him a push of it into his IV to give him a big dose…

On Tuesday, June 10, 2014, we saw the oncologist from the hospital to get the final results from the biopsy.  We knew Steve had cancer but we didn’t know what kind so we weren’t sure what we were dealing with, yet. That was when we found out it was Colon Cancer.  And since it’s spread to 2 other organs (liver and lung), it’s Stage 4.  Colon cancer is not curable once it’s spread to other organs.  Therefore, Steve will never be cancer free.  🙁 The doctor said there really is no reason to operate since there was no large obstruction in the colon (since they didn’t see anything on the CT Scan) nor is there a lot of bleeding (since Steve has never noticed any)…

Last week was great.  Steve went to work, no doctor’s appointments, the girls fought like normal, I felt anxious about the girls fighting and Max pooped in the house.  It was a normal week and it felt good. I think we needed that break from “cancer”.   Just to realize that we are all still here and need to move along as normal as we can.  It was nice.  It recharged us for another week of Chemo.  Dr. Sam told us that we “can’t change what is happening to Steve.  We can only live each day as best as we can so we have no regrets.”  And he is right.  And while it’s hard to think that way every second of every day, we try…