4 week CEA Check

The doctor called to tell Steve today that his CEA number is 12.  Last time it was 11 but the doctor says that’s still great and it will go up and down a bit, but doesn’t really mean anything.  So Steve was happy. Steve also noticed at 1pm today that his pump wasn’t working and we don’t think it pumped anything since we left the infusion center yesterday at 1pm.  🙁  So  now he’s hooked up until Saturday instead of Friday.  We weren’t very happy but nothing we can do.  Now we know to make sure it’s working like all the time.

Steve is going this morning for his first CT Scan.  We are pretty hopeful that it will look good because of how good his CEA number has been.  But seeing it will be good to reassure us that the Chemo is working. He will also have is CEA number checked on Monday.  We will have the results of both of those tests on Tuesday when we meet with his Oncologist. Steve has been getting mouth sores the last 3 cycles and they are unbearable for him.  We’ve been trying all sorts of ways to make them better and possibly avoid them but after talking to the doctor yesterday, we are thinking of pulling back on one of the Chemotherapy drugs a little bit.  There is…

Steve had his 8th round of chemo this week and he’s pretty happy it’s over because he has a break and won’t be back to the infusion center for 4 weeks. Why the break?  He needed it for so many reasons and without it, going forward would have been way too hard. First of all, his CEA number is down to 11.  So that’s GREAT!  So if he’s going to take a break, now is a good time to do it since the number is still going down and the chemo is still working. But the real reason for the break is because he needs it physically and mentally.  Even with the reduction in the 5-FU, he’s still getting the mouth sores, but not as…

We saw our 2nd opinion doctor today who is the best in RI and came HIGHLY recommended by many.  He agreed with our current Oncologist and thinks this chemo regimen is really the best way to start.  And then see what happens in 2-3 months when they do the first scan.  At that point he said if it isn’t working, we should think about something else.  He’d be more than happy to talk with us then but sees no reason to do anything else right now. Knowing he feels the same way makes us even more confident that this is the best thing for Steve.  And we really like our current Oncologist so we’ll be staying with him.  However, our 2nd opinion doctor also said…

Steve is doing great.  He’s just tired.  But he feels fine. The side effects from Chemo can come on at anytime but he’s doing really well so that helps.  He had trouble sleeping last night because one of the meds is a steroid – the nurse warned us about it. Steve is also having some back problems which is completely unrelated to the cancer, thankfully.  So his back was also very sore.  After he finally listened to me and took the pain pills they gave him at 2am, he was able to fall asleep and slept through till 10am! Who knew I actually knew what I was talking about! He’s tired still and has napped a few times but in general, he still feels great. …

Today was Steve’s 3rd Chemo Treatment.  It’s crazy how fast the last 6 weeks have gone by since we first found out he had cancer. Last time there was no issue with the port and the IV went right in with no problems.  This week we had a problem again.  Not getting the IV in, but getting the blood to flow out of the IV.  You see, when they put a port in, sometimes your body realizes this foreign object is in there and doesn’t like it.  So it sort of forms like a blood clot so nothing will flow.  I’m not sure of the exact terms they use but basically it blocks it.  When this happens you can get stuff into the IV, like…