CEA Number Update

Steve has been having a lot more back pain.  It started to get worse last Thursday night.  He had a hard time getting comfortable and could barely move.  It was so hard to see him in so much pain.  Friday morning when I spoke with the doctor, he told him to double up on the pain meds he prescribed him and if it got really out of control to go to the hospital to get something stronger to give him relief.  He was scheduled to have a bone scan on Monday (yesterday) and CT Scan Tuesday (today) so he said we’d talk after those scans to see what was going on. After doubling up on the pain meds when needed, he felt better and got…

Today Steve and I went to Dana Faber to meet with a research doctor in Gastrointestinal Cancers to talk about possible clinical trials.  We did our research and talked with Steve’s Oncologist in Warwick beforehand and we were pretty sure there wasn’t anything that Steve qualified for so we weren’t expecting much.  But figured a ride there wouldn’t hurt. And it didn’t hurt, nor did it help. We were correct.  There is nothing right now for Steve’s specific cancer and mutation of his cancer.  However, the doctor did offer to test Steve’s original biopsy sample to see if it has a specific mutation that it wasn’t tested for back in June 2014.  While the doctor doesn’t think Steve’s cancer has this mutation according to other…

Tomorrow will be Steve’s 12th Chemo treatment and his last one for this 6 month set.  We thought 6 months actually went till January but nope, it’s done tomorrow.  But that just means it’s time to change it up a bit. Currently Steve is receiving the FOLFOX cocktail of chemotherapy which consists of 5-FU, Leucovorin, and Oxaliplatin.  I am slowly learning about each of these drugs.  The 5-FU is the one that was causing the mouth sores and is also the one that he gets on a slow drip for the 48 hours at home.  You may recall that in October he reduced that one by 15% to hopefully stop the mouth sores – and it worked!  We’ve checked his CEA number once since the…

Steve starts radiation today.  He’ll have 10 treatments, Monday-Friday, to keep the tumors that they just removed in surgery, from growing back quickly and compress his spine again. He definitely doesn’t want to have that happen again. He had a CT Scan earlier this week to set up the radiation and the table he had to lay on was very hard so he was in a lot of pain afterwards.  It’s not the same pain as before the surgery but a different area and different type of pain.  But pain is pain. We’ve been spending all our time together since he can’t really go anywhere on his own.  It’s actually been pretty nice because it’s been quality time.  He seems more relaxed about the whole…

We received the results of the CT Scan today.  The doctor says that after looking at the ct scan himself, there has been a small reduction in the tumors.  It’s not as big as the last time but he feels they are all slightly smaller.  He did point out that they are measuring them in mm and not cm so we are looking at something very small in size. Tomorrow is Steve’s first treatment in the next chemo regimen and it will be less the Oxaliplatin.  The doctor is going to monitor his CEA number closely and if he sees any change then he’ll likely change up his entire chemo prescription and use some different drugs. At this point the doctor is looking at it…

Last week, Steve had a new Bone Scan and CT Scan so the doctor had a baseline before we start the next chemo.  I was curious to see how much growth there would be without him having chemo for 4 weeks (2 treatments). We saw the doctor yesterday and the CT Scan showed some more growth in the lungs.  Not a lot, but more.  The bone scan confirmed what the last CT Scan said – and there are now 2 spots on his spine, but we already knew that.  There is also a little bit more growth in his stomach on the omentum. Not a lot, so that means the cancer is moving slowly.  It also pretty much confirmed that the chemo hasn’t really been…