Back Surgery is Scheduled for Today

We met with the surgeon on June 20 2014 that was going to put in the Port-A-Cath on the following Monday.  He explained to us that it will sit in the front of his shoulder, just under the skin.  It can stay there for as long as we need it and then removed when we are done.  He will receive his chemo through the port and have all his blood work drawn from it.  This way they don’t have to poke him each time.  Of course there are things that can complicate this but those things are rare and probably won’t happen.  We are pretty confident that getting the Port is the best way to do it. The surgery was outpatient and pretty simple and…

Steve starts radiation today.  He’ll have 10 treatments, Monday-Friday, to keep the tumors that they just removed in surgery, from growing back quickly and compress his spine again. He definitely doesn’t want to have that happen again. He had a CT Scan earlier this week to set up the radiation and the table he had to lay on was very hard so he was in a lot of pain afterwards.  It’s not the same pain as before the surgery but a different area and different type of pain.  But pain is pain. We’ve been spending all our time together since he can’t really go anywhere on his own.  It’s actually been pretty nice because it’s been quality time.  He seems more relaxed about the whole…

As a parent, the last thing we ever want to do is see our children hurt. We’ve raised our girls with so much love and protection in the hopes that they would always feel safe with us. As a family, we’ve been through a lot the past 23 months and we’ve tried to be as honest as we could with the girls, letting them know along the way how much we love them and that everything would always be “okay”. Today we had to do the hardest thing ever… today we told the girls that the chemo isn’t working and the tumors are still growing. And even though daddy was going to continue on chemo the next 6 months, ultimately it’s just to get more…

Today is a new day, and a day to look back and reflect on the year. A friend wrote something that inspired me and made me look at 2016 differently. My husband died, that was absolutely the worst thing that has ever happened to me. But I’ve grown so much through that, and I like who I am today. 2016 was a GIFT and I am thankful for that. I had Steve by my side for almost all of it…. that was not something we knew we would have back in June 2014. Friends I’ve known for a long time and a shorter time came together and became friends. And all my friendships grew, tremendously! I learned from my friends and family what it means…

Today is Steve’s 17th chemo treatment.  It’s been a while since I’ve updated and I’m sorry about that.  Steve’s been bugging me to post an update but I’ve been busy shoveling snow, ice, snow again, then more snow and then even more snow, then I got up this morning and shovel MORE snow!!! You get the picture. I want to apologize because this snow is all my fault.  I think that mother nature is trying to see how far she can push me before I go over the edge.  I’m sorry to take you all on the ride with me.  Hopefully she’s satisfied and will stop. So how is Steve doing?  Steve started a new chemo to replace the Oxaliplatin.  For those of you that…

I had to take Steve to the hospital today. His breathing hasn’t been very good and I just knew it needed to be addressed. I’m so glad we went because his oxygen level was VERY low. They did a CT scan to check for a new blood clot, but found nothing. There is a little fluid in his lung but the doctor thinks it’s old and doesn’t believe it is related to this. They did hear some crackling in one of his lungs so perhaps it’s a little collapsed but again, he didn’t think it would cause this much distress. There is some progression of disease in his lungs so it could be a combination of everything. They admitted him and have him on oxygen…