Steve’s Cancer Updates

The doctor called to tell Steve today that his CEA number is 12.  Last time it was 11 but the doctor says that’s still great and it will go up and down a bit, but doesn’t really mean anything.  So Steve was happy. Steve also noticed at 1pm today that his pump wasn’t working and we don’t think it pumped anything since we left the infusion center yesterday at 1pm.  🙁  So  now he’s hooked up until Saturday instead of Friday.  We weren’t very happy but nothing we can do.  Now we know to make sure it’s working like all the time.

Tomorrow will be Steve’s 12th Chemo treatment and his last one for this 6 month set.  We thought 6 months actually went till January but nope, it’s done tomorrow.  But that just means it’s time to change it up a bit. Currently Steve is receiving the FOLFOX cocktail of chemotherapy which consists of 5-FU, Leucovorin, and Oxaliplatin.  I am slowly learning about each of these drugs.  The 5-FU is the one that was causing the mouth sores and is also the one that he gets on a slow drip for the 48 hours at home.  You may recall that in October he reduced that one by 15% to hopefully stop the mouth sores – and it worked!  We’ve checked his CEA number once since the…

Steve had chemo last week and once again his side effects weren’t that bad since the reduction.  He’s even been able to maintain his weight, which is exactly what the doctor wants right now.  It’s been nice outside the last few days so that’s been helpful too.  On the cold days we had a week ago he had a very hard time.  Once his hands and nose get cold, they hurt.  He’s trying to bundle up the best he can, but if he bundles up too much he sweats.  Over time he’ll find a balance.  It’s something new to get used to. He sees the Oncologist next Tuesday and he will then make an appointment for another CT Scan.  I’m very hopeful that we will…

It’s been about a month since I updated and I realize some of you are thinking something is up since I haven’t updated. I’m here to tell you NO, nothing is “UP”… all is good. Steve took a cycle off from Chemo and ultimately had a month break. It was a nice break and Steve bounced back amazingly and we took full advantage of it. We went to Disney with the girls! We surprised them with a trip. It was a trip we all needed. You see, we love going to Disney as a family. We go every other year and it’s the biggest thing we do. And the girls love it. We all love it actually. It’s our “family thing” to do that we…

Our amazing community is hosting an evening of Yoga in honor of Steve this week.  I can’t even express in words what this means to our family.  Every week our friends amaze us with their love, support and generosity.   Calling ourselves Lucky doesn’t even describe what we feel.  LOVED is really more like it. Steve is a very proud man, so letting them do this for us has been very hard for him to accept.  But he’s realized that this is a way that all the people around us can help me, can take some sort of burden off of me.  It’s also a way for him to see how much love we have around us. I recently posted this on Facebook and I know…